Sunday, December 16, 2012
NAMI ADVOCATE REVIEW
Sunday, December 9, 2012
SCRAMBLED EGGS...AND BRAIN-FRIED CHICKENS
SCRAMBLED EGGS…AND BRAIN-FRIED CHICKENS
I’m sure I’m not the only one who immediately thinks about chickens and eggs almost every time they hear the word comorbidity. But the first time I found a hash pipe floating around with my daughters’ clothes in the washing machine, chickens and eggs were the furthest things from my mind.
I grew up in a family who appeared quite normal on the outside and the inside. In the early ‘60s, watching your mother dress up for cocktail parties while easing down the final few puffs of her unfiltered Pall Mall was the norm. My father sitting with his after-work gin and tonic while he caught up with the national news was the norm. I didn’t grow up exposed to blatant alcohol abuse or drug use of any kind. We were all June and ward Cleaver. Really, we were. Even as a teenager of the ‘70s, drugs barely phased my world.Years later my husband and I continued the Cleaver tradition. Although I fell short of meeting him at the door in a pretty blue dress with my hair in a stylish flip, we raised our two girls in a very normal household. So when my two daughters suddenly turned from adorable little girls to unrecognizable teenage monsters with hash pipes and slips of paper decorated with curious, tiny, triangular squares in their pockets, we didn’t know how to respond, who to blame (other than ourselves), who to turn to for help, or how to stop the rollercoaster, eggshell crushing few years we were heading toward. Nothing in either of our lives prepared us for what was coming.when my older daughter’s behavior turned from that of a slightly difficult child to that of an unmanageable teenager, many hours of useless guilt bantering between me and my husband ensued: “What did we do wrong?” “Do you think it’s drugs?” “Why does she feel the need to do drugs?” “What could we have done differently?” “Am I a bad mom?” And on and on.
When she was ultimately diagnosed with bipolar disorder at the age of eighteen, we accepted this with a sigh of relief—at least this was something tangible, something “fixable.” By the time her younger sister started getting in trouble at school, doing drugs, acting oddly, becoming paranoid, and hearing voices, I could almost handle the double punch. By then I had educated myself, I had become involved in the National Alliance on Mental Health (NAMI, www.nami.org ), and I had become an advocate. But it was still hell—she was diagnosed with schizophrenia.
So where’s that chicken and where’s that egg?
Perhaps I should have been given a tiny ovum of foresight the first time our younger daughter woke us up in the middle of the night screaming in her little pink doll-baby pajamas with her moonlike eyes peering up at us without recognition and her face fixed in death-impending terror. But I was soothed by our doctor’s reassuring words: “Night terrors are very common. They are in no way related to future mental illness.” I now know that he was incorrect.
Perhaps my older daughter’s contention that she had ADHD in spite of her exemplary school performance should have sent up red flags. Maybe if I had known what I know now, I wouldn’t have placated her words: “You have no idea what goes on in my head!” But the fact is, other than a stubborn and sometimes difficult child at home, my older daughter was a perfectly charming, brilliant student who was well liked by her teachers and better liked by her friends.Then there were the things I never knew about until later. Like the fact that my younger daughter used to sit in her second grade class and say, “Iron wall. Iron wall. Iron wall,” over and over to herself as she tried to limit the external stimuli flooding her young brain.
Then there was the time she was given steroids as a young child for a severe sinus infection and distinctly heard people talking to her. “Mom, someone just said cleanup in aisle seven in my head!” The moment the prednisone was decreased, the voices stopped.
So as these early prodromal symptoms grew, so did my children, and so did their access to things like weed and alcohol and random pills pilfered from grandmas’ medicine cabinets, thus providing them something like relief.
Yet my younger daughter did not become psychotic until after that bad LSD trip. My older daughter now admits that she was doing a lot of coke when she was most manic.
Egg. Chicken. Egg. Egg.
I think what we have here is the first and second hit. The first hit being the genetic propensity for these illnesses along with an increased sensitivity to certain medications and drugs. The second is environmental. Stress, drug use, hormones, a viral infection, and head trauma have all been theorized. I have no doubt that my children were vulnerable. I know now that both sides of our families are peppered with mental illness. The use of drugs to quell prodromal symptoms could have easily brought the predisposed mental illness to the forefront. Drug use absolutely made things worse. we were lucky. Thanks to the help of a great practitioner and people I met through NAMI, my kids were helped quickly. Proper treatment was initiated and my children recovered before any sort of drug or alcohol addiction took hold. Regardless of the accuracy of their initial diagnoses, the word comorbid was never part of the equation. Twenty to twenty-five percent of adults in the US will struggle with mental illness at some point in their lives. Over half of these individuals have a coexisting addiction. what can be done to decrease these percentages? How can we decrease that drug-induced second hit?
I believe early detection is the key—flagging those children who are genetically vulnerable, screening each and every child as we screen for other serious illnesses. we need to step in and treat those early prodromal symptoms before drugs and alcohol can take hold. This can be achieved by education, by open and frank discussions on mental health, by making it okay to talk, by decreasing the learned fear, and by promoting what is needed for recovery. Screening should be done on every child by pediatricians and family doctors. Mental health should be stressed and taught in our schools, starting at lower grade school levels. we should be talking to our children about our own struggles or those of other family members. I could never talk to my children because no one ever talked to me. I was forced to learn everything I now know about these neurological brain diseases out of desperation, out of despair, and out of necessity. what we went through as a family was unconscionable. we should have been educated and supported by our medical and human community rather than made to feel ashamed, judged, and helpless. Blame it on poor genes if you must, but these are no-fault neurological conditions that are not due to poor parenting or weak constitutions.
When it comes right down to it, eggs and chickens are not all that important. It really doesn’t matter if the egg predated the chicken or the chicken predated the egg, or even if they both occurred at the exact same time. what’s important is that we understand that both mental illness and addiction are often comingled. Both need to be acknowledged, understood, and treated. The cost of mental illness is huge; the cost of comorbidity is even larger—not only financially, but emotionally and physically. I believe the mental healthcare system is beginning to understand this. Now we just need to get the rest of the world to understand.
Karen Winters Schwartz, bestselling author of Where Are the Cocoa Puffs?: A Family’s Journey Through Bipolar Disorder (Goodman Beck Publishing, 2010)
Amazon CP
Reis’s Pieces: Love, Loss, and Schizophrenia (Goodman Beck Publishing, 2012)
Amazon RP
Reprinted from "The Sober World" * November 2012 * Volume 1, Issue 9
Sunday, January 15, 2012
bp Magazine Review
By Karen Winters Schwartz (Goodman Beck Publishing, 2010)
Reviewed by Kelsey Osgood
It’s a parent’s nightmare: a teenage daughter, once a well-adjusted, academic achiever, suddenly begins to fray at the edges. Despite everyone’s best efforts, she tumbles down the wormhole into bipolar disorder, bringing her parents and the rest of the family along for the ride.
Where Are the Cocoa Puffs? A Family’s Journey Through Bipolar Disorder, the debut novel of Karen Winters Schwartz, tracks the Benson family as their eldest child, 18- year-old Amanda, is diagnosed and struggles with euphoric hallucinations, crippling depressions, suicidal thoughts, a nostalgia for mania, and eventually, a hospitalization. The story is in some ways unbelievably tidy, the most obvious example being Ryan, the instantly devoted, endlessly patient boyfriend. But what Schwartz does so well is give each character ample space and time to express how the illness has affected him or her. The most interesting dilemma is that of Jerry Benson, Amanda’s father, also a psychiatrist. Throughout the story, he wrestles with his psychiatric rationale and his emotional paternal instincts. His decisions are often questionable, but this is a forgiving book and a gentle writer, one who makes sure each character is seen as both flawed and beautiful, or in a word: human.
Saturday, January 14, 2012
Sneak Preview of Interior Layout for Reis's Pieces!

Check out the awesome formatting and chapter headings my publisher has come up with for Reis's Pieces!
Saturday, December 31, 2011
Sneak Preview From My New Novel
My new novel: Reis's Pieces: Love, Loss, and Schizophrenia will be released in May! We are busy with the final edits! As with Where Are the Cocoa Puffs?: A Family's Journey Through Bipolar Disorder, I thought I'd share a few excerpts now and then.
Reis settled into the leather chair and sighed at the doctor. “I feel like I’m being tested.”
“Tested?” asked Dr. Benson.
“Well, more like a child, really…or a criminal. Like my life isn’t my own.”
Dr. Benson frowned, then nodded and waited.
“It’s like, now that I’m part of this system, there’s no way out. So many people looking after my welfare.... It’s rather insulting.” Reis stood up and began to pace. “It’s not like I committed a crime against society. I’m not a criminal.” He stopped and appealed to Dr. Benson. “Why do I feel like I’m trapped? No longer able to man my own life?”
Dr. Benson leaned forward, rested an elbow on his knee, and placed his chin in his hand. “Reis, the system’s there for you. As you said, to look after your welfare. As long as you’re not a danger to yourself or anyone else, you’re free to walk away.”
Reis sat back down in the chair and ran his fingers through his hair. He tried to stop the gasp of sorrow that escaped from his mouth, but he just couldn’t. He rubbed his fingers into his eyes and looked at Dr. Benson. “But don’t you see? Don’t you understand? I have nowhere to go.”
Sunday, October 17, 2010
Sarah Palin and Cocoa Puffs...? I DON'T Think So!
So it was pretty cool. They had my novel right on the checkout counter, which was great! And they also had it in the new and notable section. So I stand in front of the shelf, smile my goofy smile and my husband snaps a couple shots. One of my friends just happens to be in the bookstore too, so it’s kinda festive and exciting. I smile; my husband takes another shot and then pulls the camera away and gives me a funny look. “What?” I say. “Is there something wrong with my hair?” I push my fingers through my short tresses; push it a bit forward toward my face. (Something new I’m trying…. Not that I want to look all Justin Bieber or anything…just a little more artsy and authory.) He shakes his head. “Did you notice what book is right next to yours?” I turn to the bookshelf, look at my beautiful cover and then to its right, and gasp. “Are you kidding me?! No way!” I quickly grab Sarah Palin’s stupid smiling face and remove her from the vicinity of my novel.
http://www.creeksidecoffeehouse.com/index.htm
Sunday, October 3, 2010
Breakfast of Champions!
Today is the official launch of :
Sunday, August 15, 2010
Early Praise for: Where Are the Cocoa Puffs?
Michael J. Fitzpatrick, MSW Executive Director
NAMI National
Where Are the Cocoa Puffs? Is an engaging family story of what happens when the 18-year-old daughter develops bipolar disorder. It is very well written and accurately reflects the effects of this disorder on all members of the family. Strongly recommended.
E. Fuller Torrey, M.D.
Executive Director
The Stanley Medical Research Institute Author of: Surviving Manic Depression: A Manual on Bipolar Disorder for Patients, Families, and Providers.
Saturday, August 7, 2010
Synopsis: Where Are the Cocoa Puffs?: A Family's Journey Through Bipolar Disorder
Then there’s Ryan, an architecture student, who is initially ensnared by Amanda’s manic sexuality, but is ultimately captured and held throughout the chaos by the force of love and strength of family.
Where are the Cocoa Puffs?: A Family Journey Through Bipolar Disorder, follows a family through the tragedy of bipolar disorder, but it’s not tragic. It’s funny, sad, and thought provoking – and as real and as raw as mental illness itself.
Thursday, August 5, 2010
Cocoa Puffs: Where Are They?
Where Are the Cocoa Puffs? Is an engaging family story of what happens when the 18-year-old daughter develops bipolar disorder. It is very well written and accurately reflects the effects of this disorder on all members of the family. Strongly recommended.
I was very excited to receive his endorsement! Mike Fitzpatrick, Executive Director NAMI National (National Alliance on Mental Illness) has also committed to giving me an endorsement. He’s on vacation now, hopefully reading and enjoying the galley proof as I write this.
We’ve also added a subtitle, so that the official title of the novel is: Where Are the Cocoa Puffs?: A Family’s Journey Through Bipolar Disorder. They shot the photos yesterday for the cover, so I should be seeing it soon. They’re going with the empty cereal bowl theme. I hope I like it! Sheila Le Gacy will be hosting a NAMI fundraiser/book launch party at her home toward the end of September. I will be talking at our local Syracuse NAMI conference in October and hope to do something on the state level in November.
I’ve also had a couple essays published in our local paper. You can see these on-line by hitting the following links:
http://blog.syracuse.com/cny/2010/05/guest_column_why_dont_we_treat_mental_illnesses_like_physical_illnesses.html
http://blog.syracuse.com/cny/2010/07/end_note_by_author_karen_winters_schwartz.html
Needless to say, I am very excited. I’m also slightly freaked-out and nauseated.
This is truly a good and important book. I expect everyone to buy it, love it, and give it to all their friends and family for Christmas/Hanukkah. I will send along the cover design just as soon as I have it!
My very best and love to all! Karen